Rare Disease Day Events

Save the Orphan Drug Tax Credit

The Orphan Drug Tax Credit is threatened. Representative Dave Camp, Chairman of the House Ways and Means Committee, has proposed the repeal of this critical incentive. The Orphan Drug Tax Credit, which allows drug manufacturers to claim a tax credit of up to 50% of certain research costs for orphan therapies, is a major incentive for orphan drug development within the Orphan Drug Act of 1983. Without this tax credit, millions of patients with a rare disease may never see a treatment.

Please enter your zipcode below to access a letter to send to your members of Congress urging them to support this absolutely vital tax credit.

Please edit the letter freely, adding your own story or perspective to this important issue.



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